Wednesday was the magic day. Ever since beginning chemotherapy, the routine at the hospital had been to draw blood at 6 in the morning, so by the time the doctors started making their rounds at 9 my blood counts would be in, and the course for the day could be determined. Early on, while everything was at rock bottom, I was given a variety of blood products to help boost some of the numbers (packed red blood cells for my hemoglobin, platelets for my platelets, etc…), but my white blood cell count was left to grow on its own, so that the oncologists could see what was happening with the treatment. Last weekend the numbers started to go up, slowly but surely. And, by Wednesday they had finally gone beyond the level that was considered neutropenic, thus giving me the green light to go home.
The discharge process is an interesting one. One of my nurses suggested I start making “a lot of noise” just to make sure all the coordination that needed to happen actually happens between the medical doctors, the oncologists, the infectious disease doctors and the pharmacy. It went as smoothly as possible, with the exception of the pharmacy. Apparently I was the only person in the hospital taking ATRA (Tretinoin – the main drug used to combat acute promyelocytic leukemia) and they only had enough pills to cover two doses (or 9 capsules) — enough for one day. I needed enough for a month. Not sure where they got them, but we returned to the pharmacy on Thursday and they had the remaining 261 capsules ready. (On a side note: I’m not exactly sure what I would be doing if I did not have health insurance — I found out the cost of that particular medication runs around $7,000 per month, and I’ll be on it for at least a year… do the math.)
At any rate, I’m home now. I’m mostly spending my time resting, sleeping, watching movies, eating, sleeping, sitting in the sun (nothing feels better after 31 days in a hospital room than fresh air), taking baths (as a parting gift they removed my pick line, so I am catheter free until my next round of chemo), and the best part, sleeping in my own bed (I think I can get used to not being able to raise my head and feet, having my vitals taken at all hours of the day and night, starting an i.v. at 2 a.m., etc…).
It’s not over, yet. The plan for the next stage includes visits to the oncologist, several days a week of lab work, commencing the next round of treatment (consolidation) — which will require another hickman inserted in my chest and more chemotherapy — reduction of white blood cells (which means becoming neutropenic again), another stay at the hospital, rinse and repeat (at least twice). But, it’s one day at a time here at the Sattler-Reimer residence. So, we are enjoying the days I do get to be at home, even if I am sleeping for most of it.
11 Replies to “Home at last”
Welcome home, Dan! Hope you have the windows cracked open a bit today – supposed to be warm and sunny.
This is good news to be back in your own bed.
I am keeping you and V in my thoughts.
Enjoy the weather today, it’s lovely.
I am so happy to hear that you’re home! I hope the next year is easier than it sounds.
YEAH!!!!!!!!!!!! Big Hug!
I hope you are enjoying your deck in the warm weather you are having. I told you we were going to be freezing with snow when your weather was warm. 🙂
Wally and I are so pleased you are resting at home!! Where you can really get some rest . . . at least I hope Viginia isn’t waking you on any regular schedule to poke, prick, prod or medicate :-). I’ve found the immunity boosting soup recipe and will be dropping some off soon. Much love, Ciao, K.
whoo-hoo! home again home again! I’m happy to hear that you’re back at chez sattler-reimer! i’ll try to visit as soon as my little sore throat goes away.
thinking about you both.
I’m happy to hear you’re home!
(sending lots and lots of positive thoughts your way)
It must feel great to be home again! I can’t even imagine all you and V are going through – keeping you both in my thoughts and prayers.
Home Again, Home Again, Jiggety Jig! That’s good news! Wishing you well!
See a note from Don on the “cake and yarn” place. We just recently learned what was going on. We’re thinking of you often.
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