Crash course in home health care

I’m sure I’ve mentioned how much of a difference it makes having someone by your side to help go through all the tough stuff in life. But, I feel it bears repeating. Virginia has been a wonder and has taken on so many different roles over the past couple of months that to list them all would be a feat in and of itself. And, all of this she has accepted without complaint… including all of the stuff she has to do just to keep me maintained. She cleans and flushes my two ports every day. She’s been trained to change my dressing once a week. And, now, she’s just learned how to give me an injection (I know full well, I’d not be able to do it to myself). We hope this is just a temporary assignment, but since my white blood cell count is still sluggish in its increase, my oncologist ordered some injections of G-CSF to help stimulate the bone marrow into producing more white blood cells. So, lucky Virginia gets to add another skill to her repertoire.

I tell myself that if push came to shove I could probably do these things if I had to, but upon further reflection, I really doubt it. So thank you, my dear, for everything—for making this crazy time in our lives that much easier to go through. Like our friend Tim said, “you should get combat pay for this one.”

On a different note…

I received a couple of Bio-Domes from a colleague whose son (I think) designs and sells them. They are the perfect chemo cap for the summer (or spring and fall, too). Thank you!

Bio-Dome (aka Chemo Cap)

Renewal

After being sprung from the hospital on Tuesday, I was greeted in our yard by all manner of spring things in the process of renewal. As the days wore on during this last stay, I had a feeling I would miss out on the most exciting time of the year (as far as our yard is concerned). Granted, I did miss out on the crab apple and most of the tulips, but there are still enough reminders around me to illustrate the ever-growing and renewing side of nature. I feel a bit more compelled this year to take that all in, to appreciate it just a bit more, and to let it translate to my own body. Spring is the time for overcoming odds, for taking the energy that has been stored for the past 5 months (or 8 if you live in Minnesota) and converting it to something like this:

Hostas

Tulips

Snowball Verbenum

Iris

I have one more round of chemotherapy to go (fingers crossed) — most likely to start in two weeks or so. But, I am encouraged and renewed by the sight of these things.

Home at last… again

That’s right. The oncologists agreed to send me home today. I’m still neutropenic, so they made me promise to come back if my condition changed, and packed my bags with a whole arsenal of antibiotics. So far, so good. I’m awfully tired (2-and-a-half weeks of hospital stay is no way to build strength and endurance), but very happy to be able to spend the better part of the day hanging out somewhere other than room 8109. And, since it is our 8th anniversary today, it’s especially nice to be home.

Distractions

A week ago Sunday (has it been that long?) I was admitted back in to the oncology ward (referred to as 8 East – has a better ring to it, doesn’t it?). The fevers I had on Sunday and Monday went away (probably because of the antibiotics they had me on again), but my numbers are still taking their time to get back up to where I can fight off infection. So, even though I’m feeling relatively good, here I am. This time around I’m one of the easy patients — other than 3 transfusions of platelets and 2 transfusions of packed red blood cells, I’m just sort of hanging out (although, the days when my hemoglobin is down I tend to sleep a lot, so that doesn’t really count as hanging out).

So, the other day they talked me into getting a DVD player in the room (provided by 8 East) as well as a Playstation (a PS2, if I’m not mistaken). The last time I spent any serious time on a gaming console was when I bought a second-hand SEGA Genesis with my hard-earned allowance in junior high. Twenty years later and a couple of hours of some arduous training, I still might have a chance to become a mechanized cop ready to free the world of terrorists and robots. Of course, Andy (the nurse that hooked me up with this particular distraction) has coached and encouraged me a little (in between his rounds, of course).

So, while I save the world from the bad guys, I wait here in the hospital while the real heroes (sorry for the cheesy comparison) work on getting my bone marrow to start functioning properly again.

I’m hoping to head home early this coming week, so keep your fingers crossed. And, after a few days of rest and rebuilding of strength, I’ll be repeating the whole process all over again. Let’s just hope they don’t overwrite the memory card on the PS2 between now and then…

Back to bad food and sleepless nights

Well, that patience that I was talking about could have come in handy yesterday. I spiked a fever in the morning, and after consulting with the on-call oncologist, went to the emergency room. Eight hours later (most of that time spent sitting and stewing about the inefficencies of the system, lack of communication and the fact that the eight-hour wait could have been avoided if they had just admitted me like last time) I was welcomed back by the staff in the oncology ward for another stay.

So, here I am again, waiting for my blood counts to go back up, waiting for the fevers to subside.